Clinical Practice Research Datalink (CPRD)
We still carry this out and collect the necessary data as before. We also have linked in with CPRD which carries out research across the country, and if you are involved in any particular studies, they may need access to your health data.
Below are two links to the activity they undertake, with your rights to opt out if wished.
What we do with information about you
Data protection and processing notice
The CPRD is a well established body, overseen by the Medicine and Healthcare Products Regulatory Authority (MHRA), and has a good record of delivering research to monitor safety of medicines and other healthcare interventions.
Research
The staff at this practice record information about you and your health so that you can receive the right care and treatment. We need to record this information, together with the details of the care you receive, because it may be needed if we see you again.
We may use some of this information for other reasons, for example, to help us to protect the health of the general public generally, to plan for the future, to train staff and to carry out medical and other health research for the benefit of everyone.
Some research is carried out on anonymized data which means it is not possible to find out which individual set of records the data comes from, and this research does not require your consent because permission has been granted by bodies such as NHS England. Other research is carried out on individual people, and this can only happen with your consent. So if a research study wishes to access your records or have your involvement, you will have the opportunity to ask questions and say no if you do not want to be involved.
Where is the research published?
A list of published research using the THIN database can be found here or please contact Michelle Page on telephone number 0207 554 0663 or email michelle.page@thin-uk.com for a paper copy.
Who is doing the research?
These studies may be performed by academic researchers or commercial companies amongst others. However, no researcher has access to your full details such as your name and address, initials or your full date of birth. The researchers are not given information about the GP nor the practice name, address or post code.
Can I opt out?
If you would like to opt out of this data collection scheme, please let your doctor know and no data from your records will be collected for use in research. This will not affect your care in any way.
If anything to do with the research would require that you provide additional information about yourself, you will be contacted to see if you are willing to take part: You will not be identified in any published results.
Could you help with a research study about Type 2 diabetes?
Research in Newcastle has shown that Type 2 diabetes can be reversed to normal. Professor Roy Taylor's team is now testing whether this is also possible for non-obese people with type 2 diabetes.
For more information click here